Wednesday, 4 August 2010
4th Aug 2010 21:47
I think its time to explain the sight problem, as most think that I will lose the sight from one eye. This is not the case. They say I will lose the right side of my vision on BOTH eyes. To imagine this one can hold up a book or hands and block the sight over the entire right sides of left and right eye so u can only see half of the eyes vision. Having just one eye working fine is no big deal, but this is not going to be so fun. But I suppose its better than total blindness, which the surgeon says is not on the cards.
4th Aug 2010 19:02
Had a visit from the ex sister & bro-in-law this afternoon, while GF was away fixing personal stuff. They arrived around 14:30 with blueberry pie and cream and made some of the GF's Ethiopian coffee (the only coffee she drinks as she comes from there and that is actually where all coffee in the whole world originates from) and we sat and talked. They told me about how ex sis-in-laws mother found a lot of stuff in her body early last year and how she had written, a long time ago, a testament about how to do the right thing if things ever happen to the body that are irreversible. She passed away late last yeat and the document was known of by the hospital staff. Its not juristic but its signed by two witnesses and states that if things go wrong they can shutdown the life support.
Its in Swedish, but thats were I live, so I have printed it out and will get my ex sis-bro-in-laws to sign it!
Well, what a nice surprise. Nr 2 son has come home and we have had a long and, sometimes, emotional talk. He is very intellectual and understands the things that are happening. This is a good sign. Now its time for some scrambled eggs ala Stephen.
Its in Swedish, but thats were I live, so I have printed it out and will get my ex sis-bro-in-laws to sign it!
Well, what a nice surprise. Nr 2 son has come home and we have had a long and, sometimes, emotional talk. He is very intellectual and understands the things that are happening. This is a good sign. Now its time for some scrambled eggs ala Stephen.
4th Aug 00:16
Took a sleeping pill, which doesn't do a shit for a while.
Writing on my iphone 3GS, which takes time but is easier to see the text. GF is falling asleep beside me due to exhaustion in listening to me. Dont blame her.
As for oblivion, I know what its like when i crashed my pedal bike and lost consciosness for 20 min. I forgot the first 10 mins from my journey from home to the crash spot. Some punks had loosened my front wheel nuts and the wheel fell off. My helmet saved my death, which was a real thump on the temple of my left head So, i know oblivion and it could be a good way to solve this "lying as a slice of bacon" for evermore?
Wonder if i have the guts? Would be nice to be remembered by Blizz as a second to none support guy, immortality!
Tablet starting to work. Best not write masses of blurd shit i guess
Writing on my iphone 3GS, which takes time but is easier to see the text. GF is falling asleep beside me due to exhaustion in listening to me. Dont blame her.
As for oblivion, I know what its like when i crashed my pedal bike and lost consciosness for 20 min. I forgot the first 10 mins from my journey from home to the crash spot. Some punks had loosened my front wheel nuts and the wheel fell off. My helmet saved my death, which was a real thump on the temple of my left head So, i know oblivion and it could be a good way to solve this "lying as a slice of bacon" for evermore?
Wonder if i have the guts? Would be nice to be remembered by Blizz as a second to none support guy, immortality!
Tablet starting to work. Best not write masses of blurd shit i guess
Tuesday, 3 August 2010
3rd Aug 2010 19:00
The Ruddles County beer is being drunk from my pint mug and Fish & Chips is being made (the easy way in the oven) for GF and myself. Haricot beans and brussel sprouts plus som baked beans with make it tasty.
So to more matters, that, unfortnately, do not sound as nice as dinner.
The surgeon told me that the tumour is probably malignant and they cannot rule out a secondary one lying very, very hidden in my brain.
The position of the thing at the moment is very much within my vision area and not an easy thing to work on. The thing is that my sight is being effected by the growth and in all probabilty will, after the investigation surgery, result in my entire right side of both eyes sight disappearing.
As it is also near other stuff it could effect my speech and other things, which is a bummer.
So now I can say that I am no longer a driver unless a miracle happens and i come out unscatherd. My GF will have to take over my Cooper and become my chauffeur.
Next Tuesday, 10th Aug, I'm checking intó the Karolinska Neuro Host and having another MRI to find the possible "other culprit". Then the day after they are going to put me out for 3 + hours and cut a part of my skull away from the left side of my head, by the ear, and, using micro instruments, go through blood capilaries to take a biopsi of the tumour. This could cause the stuff already mentioned but i guess i'll just have to hope they are top notch and dont do anything.
After they know then the treatment can be decided. They dont really know if the op will happen next
Wed if there are more pressing things occuring for others.
They rang me up later and told me that i have now been given tablets for Epilepsy, which could happen. Nowadays prescriptions are sent electronically to the central Chemists base and you can get them from the nearesr chemist. So its one in the morning and evening.
So, I have a week of doing what i want and then who knows what my life will be like after the surgeory. One thing is clear is that work is not on the cards for an undetermined time.....so im busy deleting lots of phone nrs on my iphone...time for a shake down anyway.
Until next post....
Stephen
So to more matters, that, unfortnately, do not sound as nice as dinner.
The surgeon told me that the tumour is probably malignant and they cannot rule out a secondary one lying very, very hidden in my brain.
The position of the thing at the moment is very much within my vision area and not an easy thing to work on. The thing is that my sight is being effected by the growth and in all probabilty will, after the investigation surgery, result in my entire right side of both eyes sight disappearing.
As it is also near other stuff it could effect my speech and other things, which is a bummer.
So now I can say that I am no longer a driver unless a miracle happens and i come out unscatherd. My GF will have to take over my Cooper and become my chauffeur.
Next Tuesday, 10th Aug, I'm checking intó the Karolinska Neuro Host and having another MRI to find the possible "other culprit". Then the day after they are going to put me out for 3 + hours and cut a part of my skull away from the left side of my head, by the ear, and, using micro instruments, go through blood capilaries to take a biopsi of the tumour. This could cause the stuff already mentioned but i guess i'll just have to hope they are top notch and dont do anything.
After they know then the treatment can be decided. They dont really know if the op will happen next
Wed if there are more pressing things occuring for others.
They rang me up later and told me that i have now been given tablets for Epilepsy, which could happen. Nowadays prescriptions are sent electronically to the central Chemists base and you can get them from the nearesr chemist. So its one in the morning and evening.
So, I have a week of doing what i want and then who knows what my life will be like after the surgeory. One thing is clear is that work is not on the cards for an undetermined time.....so im busy deleting lots of phone nrs on my iphone...time for a shake down anyway.
Until next post....
Stephen
Monday, 2 August 2010
2nd Aug 2010 17:00
Had a nice lunch with some work friends but had to tell all, of course. This blog is one thing but from the horses mouth is deemed best i suppose. I poured down and GF came to pick me up in the Cooper. She is getting more used to it now.
I'm very tired but cannot shutdown at all and GF thought i was sleeping when she went off to get her car from the garage. My older sister rang from her and hubbies home in Javea in Spain. They have a small but nice flat there at a friends house, occupying the lower level. As we were talking my mobile rang and it was the Neurological Centre at Karolinska, Solna, where I will be meeting surgeon Dr Jennie Pettersson-Segerlind at 14:00. I have nothing to say and will let them do all the talking. I'll sign on the dotted line, wherever they want. There isn't much to be discussed.
Tonight I will take a sleeping pill.
I'm very tired but cannot shutdown at all and GF thought i was sleeping when she went off to get her car from the garage. My older sister rang from her and hubbies home in Javea in Spain. They have a small but nice flat there at a friends house, occupying the lower level. As we were talking my mobile rang and it was the Neurological Centre at Karolinska, Solna, where I will be meeting surgeon Dr Jennie Pettersson-Segerlind at 14:00. I have nothing to say and will let them do all the talking. I'll sign on the dotted line, wherever they want. There isn't much to be discussed.
Tonight I will take a sleeping pill.
2nd Aug 2010 09:50
Actually made the effort to sleep without a pill last night......
At 2 am i gave up and was up until 6 am. Have dozed an hour or so because of those ruddy cortizon tabs. Have taken next lot, too, so I'm going to be high again....and I cant see any real difference to the eyes yet. Very frustrating when i really want to go for a drive.
"Dream" some very strange things and not altogether nice stuff either. Hope they get on with me soon so i can get on with whatever is left of my life......im not putting any eggs in any baskets yet. Not that ive got any..cupboard is bare..have to do some shopping.
I have a lovely Yamaha Alt sax, which I havent blown for years. Its down in the cellar at work where i could blow it without disturbing all the flat tenants. I'll have to take some time and do that now, while im waiting. Might do me some good. Will have to take the bus to work in Farstato get my card, though, and a few other things prolly.
At 2 am i gave up and was up until 6 am. Have dozed an hour or so because of those ruddy cortizon tabs. Have taken next lot, too, so I'm going to be high again....and I cant see any real difference to the eyes yet. Very frustrating when i really want to go for a drive.
"Dream" some very strange things and not altogether nice stuff either. Hope they get on with me soon so i can get on with whatever is left of my life......im not putting any eggs in any baskets yet. Not that ive got any..cupboard is bare..have to do some shopping.
I have a lovely Yamaha Alt sax, which I havent blown for years. Its down in the cellar at work where i could blow it without disturbing all the flat tenants. I'll have to take some time and do that now, while im waiting. Might do me some good. Will have to take the bus to work in Farstato get my card, though, and a few other things prolly.
Sunday, 1 August 2010
1st Aug 2010 09:55
After paying 120 kr for my pics I have finally got them copied through good old print screen and paste on XP! Wow! So i have taken a few from 26th July (day one), MRI from 28th (day 2) and the last one showing my lower body. How many more i will have i dont know as yet.
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