Saturday, 31 July 2010

31st July 2010 23:04

Was out on Stockholm today with the GF and sat at a pub on Hornsgatan. Met a very nice couple who told us about their travels around the world and in particular to the Carribean on a three week holiday on a huge English cruise ship, Ventura. It sounded fantastic. Naturally the garden party my friend told me about was on the 22 Aug and not today so it didn't matter we were late to town. My ruddy eyes still play havoc with my sight though and typing is not as easy as it used to be, with lots of deleting and retyping. Hohum!

Today I should have been nicely on board the boat from Göteborg heading for Tilbury and my sister and bro in law.

Friday, 30 July 2010

30th July 2010 20:30

Time for another 12 cortizon tablets. Tomorrow 10 morn and even, day after 8 x 2 and so on. Hope this will make the vision good but im not betting my hedges.

GF brought me home at 4pm and on the way i went to pick up my new glasses. I put them on and couldn't really see any diff and told the man behind the counter that i had had my eyes checked, as i had actually said to them i would do. He was very kind and, due to the situation, he refunded me the money and kept the 2400 kr glasses. I'll have to check them again when the crap is over.

Friday 30th July 2010 11:00

Have just been visited by the neurolog and a dr. The Neuro man confirms that the pictures are not very clear as to the type of cell it is and they are going to have to go in to my head. I will be seeing some surgeons next week probably and it could take over two weeks before anything happens. So I am sitting here on my bed at Söder Hospital, waiting to get medicine to take home and some prescriptions. I will be checking out and eventually checking in at Karolinska Neurological Clinic in Solna, Stockholm when  its time for the "drilling" Needless to say, this fills me with a certain amount of anxiety but everyone says they are extremely clever and its nothing to worry about..really. But its my bloody head and i dont want to lose my speech, sight etc etc. I miss my Mini Cooper and the though of never being able to drive again is not nice. After all, I've been on the road since 1971.

Anyway, they have said I can drink beer and have a bar-b-q and do as normal, despite the cortison treatment. So tomorrow afternoon I'm going to an English Garden Party with my GF after being told about it by my English friend, Sandra.

I only hope the cortison take the water from the tumour so my eyes work again and I dont lose my license.

Sometimes you have one thrown your way without knowing!

Monday 26th July


What happened?… and is happening!

Here I am going to try to write the things that led to my present status. If the text is strange then its due to the thing that brought about the actual fault in me.

Well, I am a guy who has being working with computer stuff for many years and have helped customers with their equipment based in our co-location site. One of these is actually Blizzard Entertainment and they have become close friends of mine.

I had booked my holiday to the UK, driving my fantastic Mini Cooper S 2007 via Gotherburg to Tilbury and, later in Sept, a trip to stay with my Blizz friend for 3 weeks in LA.

Last week I found that I was having a teeny bit of eye sight problem and, naturally, thought I neede a new check after two and half years. I did need new glasses but this was not helping the fault i had as they cannot see this in their instruments. I spoke to my lovely GF, who is a nurse, and she told me to go to the eye emergency dept.

I let the weekend go and went for a walk and, while sitting down by Rudans Gård, here in Handen….I started to check on my sight.

I put my arms out, stretched to either side and checked if i could see my fingers wiggling. Left lower and upper ok, right lower ok but upper was a no no. I moved my hands nearer to my nose and the thing appeared in the centre. I had been having difficulty seeing text on the right side a bit during the beginning of last week but not so extreme. I went to the optician last thurs and my reading was ok and i needed new glasses after two and half years anyway. The other stuff she couldn’t check.

So, I spoke to my nurse girlfriend and she said I should contact eye emergency at St Eriks Hostpital in Stockholm. At 23:00 they told me to ring to Söder Hospital which is my local emergency. So, I drove my Cooper to work in Farsta quite early and ran off to the bus for the centrum where i then got the tube to skanstull. I was admitted to the eye dept and was seen quite quickly.



26th July 2010 08:30


A nurse took me for a quick check of my eye pressures which were ok. I touched my nose from each side…ok…eyes closed…ok….move them around..ok. Then i told her the problem and she said the dr would check more.

After the dr had looked with blinding light at me she sent me for a new check where i would look with each eye individually. They gave me a button to press when i could see the small flashes that popped up on the screen. After that was done, and me knowing i had missed everyone in the upper right region she looked in my eyes again with special drops so she could see further back.

She looked at me and said that she suspected i had had a mild stroke by my optical nerve system that transports the light to the back of the head. She gave me a admittance paper to the medical emergency dept and off i went, outside the building, to enter the emergency dept and queue again.

It went quite quicklly and i saw a dr who told me, while drawing my eyes on the paper lining the bed i was sitting on that it could be a vessel that has burst or it could be a tumour under the “roundabout” that eye channels take to the back of the brain. He didn’t think so in this case but i would now have a brain xray inclu taking a contrast injection for the last part of the x-ray.

When done the dr called me back and told me that i had a primary brain tumour at the side of my eye central and it was the water on the tumour that was causing the upper right side sight problem, which is effecting both eyes if i haven’t said before.

So, with that bomdshell, I rang my GF and she came very quickly and they moved me up to the ward for further treatment. I had known from the eye dr that i was now banned from driving for at least 1½ months and she would be kind and not report this yet to the auth so my license would not be taken. Now i have to take cortison, 18 dissolve tabs twice a day, reduces every two days by two tabs for at least 2 weeks, to take away the water so my eyesight returns again. My GF drove my loving Cooper home without any hassle and parked it in the underground carpark by my flat, locked away. Now i know im going to have an MRI on wednesday.



27th July 2010 13:00

Today they have taken my blood to test for cholesterol and it looks not bad considering i had stopped taking my simvastatin while slimming. Now im back on it for my normal cholesterol which is at 8,5 but the nasty one, triglycerides, is at 1,5 which is great! Slimming and not eating masses of crap is good. I wnt down from 82,7 kilos to 76. During the afternoon my GF was here and my ex and my 3 boys, 15, 16, he is now 17 as from 28th July, and my oldest, 21.



28th July 2010 09:00



Taken downstairs for my MRI (Magnetic Resonance Imaging ), which took 45 mins of laying as still as a rock. They also shot contour liquid into me again (my poor kidneys)

Just while i was going to eat my lunch i got a visit from two drs, one a neuro dr who told me they couldn’t say the tumour was primary until they had checked the rest of my body for stuff. This i had heard from the mri tech who was going to rebook the xray from today, 29th, until tomorrow. This was to spare my kidney and liver i think. The nero dr did not call the tumour for tumour…he called it cell change. And to make things a bit more shaky he said that, lthough they can see from photos to a fantastic degree if things re malignant or benign they will probably have to go in anyway. The bloody thing is at the front of the brain, to the left and they have to go a long way in. That does not feel so good actually. Ho Hum!

The day went by and then i got the news i could go home on leave for a night. Then they came back and said my x-ray would be on the 29th anyway as my kidney and liver were very good and i was healthy otherwise. So GF took me home and we could spend the evening and night together, cuddling. I hade all my tablets with me and took my sleepimg one as usual as the cortison speeds you up.



29th July 2010 08:00



I had to be back on the ward by 08:30 to take my special drink of almost one litre before being taken down, again, to the same machine as on monday. Here i was injected again with contrast fluid and they took photos of my lower region for 10 mins. Now I have to drink a lot of fluid to help my kidneys.

I’ve just eaten fish soup and pancakes and strawberry jam for lunch…..and lots of water. Now im waiting for my ex wife-in-law to come and see me with some good cd books that i can load upto my iphone and rest my eyes and lsiten to stories.

The Neuro team at Karolinska meet today to look at everyones pics. They will decide what is what and i’ll maybe get to know the score today. Then i’ll probably have to move to Karolinska Institute at Solna, just in the north part of Stockholm.



29nd 13:25



Just a bit more. Nothing wrong with my lower parts. Will probably get leave from tomorrow. The Neuro team have lots of patients to check so i might not be among them today, so next meet is on Monday. HoHum! Have spent the evening loading up lots of Hasse & Tagge cd's to my IPHONE, so now I can botanise in the vast selection of comedy from these two classic Swedish comedians and they troup of members on stage. Have also looked at an episode of The Sweeney, one from the entire collection I bought from HMV online. Have also got Kungfu with me too, if I have the effort to watch.



30th July 2010 05:28



Despite a sleeping pill, which knocked me, I woke up to the patient opposite me nose sniffing and the nurse visiting the one in the outer corner of my four bed room. So up I got, had a fresh shower, weighed myself (75,5 kilos) and am trying to open up the CD with all my x-ray pictures, which cost 120 kr. Of course you see on the cover that its not supported for Windows 7, only NT4, 2000 Prof or XP! So I’ll have to wait until later on if they let me go home for the weekend. My home made power pc has good ‘ol XP Prof that works better than W7. Sodding version!!!

Oh, thank goodness they've turned off the room alert alarms! They seem to be oblivious of them when they work nights here. Very disturbing for your sleep. Now I've been awake since 4 am